SECOND OPINION | CHRONIC FATIGUE SYNDROME| BCBS | Full Episode

Chronic Fatigue Syndrome (CFS) is a debilitating chronic disease that has a significant impact on a person’s quality of life. Because the cause is unknown, effective treatment is still out of reach for many patients. Danielle Warner’s description of battling CFS every day is a heartbreaking one, as she longs for her once active and vibrant life. Her husband and caregiver, Tyrone, joins Danielle as they share the story of their life, and their uncertain future.

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9 Replies to “SECOND OPINION | CHRONIC FATIGUE SYNDROME| BCBS | Full Episode”

  1. I really liked the show . But didn't think the extra little movies were correct . Mentioning that depression can play a role in persistence of symptoms . Which really incorrect . ME/CFS is not fatigue but a problem of recovery that takes days weeks or months after the smallest exertion . It's called Post Exertional Malaise ( PEM) . That has nothing to do with depression. You can get depressed and that should be treated but that won't improve your PEM. Not with talk therapy . Heck many patients are not even capable of talking ……
    The second movie at the end didn't even mention PEM the hallmark of this illness which had been the biggest symptom in the Institute of Medicine Report .

    Otherwise the show was perfect . And want to thank you for the support for this terrible illness.

  2. Thank you for helping to get this horrible disease out to the public and physicians out there. I have never felt so humiliated and frustrated in all of my life. They appear to look down their nose at me in disbelief, I can read their smirky expressions on their faces with the disbelief they have of me, they appear to believe that I am a hypochondriac, so they pay no attention to what I am trying so hard to tell them. I have most of the symptoms of ME/CFS, so many symptoms that I have to keep them written down to remember them all with my brain fog I have to deal with.
    This disease appears to be turning into an epidemic around the world. But, it does give me a little comfort in knowing I am not alone. I am left on my own to try and find a good doctor that specializes in ME/CFS because my M.D.admittedly knows nothing about it and knows of any physicians that specializes in this field. I live approximately 40 miles East of Birmingham, Alabama and if you happen to know of a good doctor in this direction, I would be so grateful if you would take a moment to let me know.
    I can be reached by my email address and please put in the subject line MECFS DOCTOR RECOMMENDATION or it may be captured by my scam folder. ladydawright@aol.com
    Thank you in advance for all of your help!!!Debra Wright

  3. If it's a Psych issue (which I don't believe) then why does the American Red Cross make it a point to add to their website and Blood Drive paperwork, on Dec 3, 2010…" in the interest of patient and donor safety, the American Red Cross will defer indefinitely any donor who reveals during the donor interview that they have been diagnosed with CFS."?

  4. The interview is great, but the breaks, are insulting. First, before I complain about that , THANK YOU for creating awareness for us! ….Dr in the break said"Talk therapy can make the person better"??? Can I slap that guy???? WOW!!! So, talk therapy can make my swollen painful lymph nodes, spleen, and fever go away? hmmm, that was  what he called medicine, quack! Sure we can be depressed from this, but we don't go to a Dr. for that, that's for our therapist if chosen. What we want is Dr.s to start being Dr.s instead of their nurse typing symptoms into a computer, having the possibilities pre-calculated for them, then testing for that, when negative, they shrug their shoulders, say its in your head and kick you out. Dr.s want the easy money today. REAL dr.s like the one on here who said there is actually tests, where can we find them? This is sponsored by BCBS? I have that insurance, but the only Dr.s here that test for CFS etc are functional medicine Dr.s who don't take insurance so even with BCBS, I am up a creak without a paddle. I have slowly recovered a bit thanks to Toby Morrison's program, determination, and alternative/at home treatment, but all Dr.s have done is thrown pharmaceuticals at me that made me sicker or shoved me out the door…. very hard illness to deal with, and as another commenter said, becoming an epidemic. Even my children have chronic low grade fevers and are homeschooled dut to being ill too often. Can you imagine? a single mom with fibro/CFS also homeschooling….. geez, if I can do this, Dr.s can think outside the box!

  5. I wish they would have concentrated more on the treatments they said were available, or are on the horizon. What are they and where can we find a doctor who is working on them?

  6. Depression complicates many – maybe most – chronic illnesses; anyone who doesn't know this could try imagining what it would be like to be sick (to feel sick) for years – and to know you might never feel better. Despite this, you'd never hear a doctor suggest cognitive-behavioural therapy (CBT) as "first-line treatment" for Crohn's disease, rheumatoid arthritis, diabetes, lupus, multiple sclerosis, or any other chronic illness – except, of course, fibromyalgia, which is a likewise stigmatized illness.

    Of course, CBT might be a useful adjunct to any person with a chronic illness, in helping them to cope with the realities of their new life. For a physician to recommend talk-therapy as "first-line treatment" for CFS, however, speaks volumes to how many doctors see the disorder – as wholly (or mostly) "in your head." Doctors even have a "code word" for it – supratentorial – which sounds impressive, but is simply shop-talk for "neurotic." This attitude is profoundly insulting, and explains why patients seek-out alternative practitioners who are less-likely to dismiss them as simply "depressed."

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