Coping With Chronic Fatigue Syndrome and Fibromyalgia

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Coping With Chronic Fatigue Syndrome and Fibromyalgia

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*Alka Seltzer- (this one has asprin)

*Alka-Seltzer God (this works just as well without asprin)

*Magnesium Malate-

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This is in part 2 of our videos about Chronic Fatigue Syndrome and Fibromyalgia, also called Myalgic Encephalomyelitis and other names. I have had CFS/FM most of my life and here’s what I do to try to control it.

How we cope with CFS/Fibromyalgia article I mentioned in the video:

Link to essential oils for sleep:

You can see part 1, About Chronic Fatigue Syndrome and Fibromyalgia here:

Here are some of the points we discuss in this video:

0:13 When we first got married, Mike didn’t really understand how serious my chronic illness was.

0:39 Mike’s experience realizing what chronically ill really meant.

2:49 Tawra: When we got to Idaho where it was cooler and the humidity was low, I was able to perk up a little bit.

2:58 Mike: I didn’t really recognize until we had been married 10-12 years how to really recognize when Tawra was sick.

4:10 Mike: I started to recognize that when Tawra has a Chronic Fatigue Syndrome flare, she gets really pale and when that happens, the Alka-Seltzer helps. Tawra talks about Alka-Seltzer.

5:10 So with the CFS, Tawra will be pale and laying around with a strange expression on her face like she’s not present at all.

5:31 What Fibromyalgia looks like

6:11 The Fibromyalgia is a muscle problem so rubbing helps a lot.

6:23 Restless leg syndrome.

6:48 Learning to distinguish between the CFS and the Fibromyalgia

6:58 My tips to what I use to help me feel better.

7:30 Most recently, I spent $10,000 going to a functional medicine doctor. He helped some but I don’t know if it was worth the money.

8:12 For Chronic Fatigue Syndrome, the thing that helps me the most is sleep. The 3 most important things to keep CFS under control are are sleep, staying away from stress and not exercising too heavily.

8:34 It’s hard because getting sleep is difficult when you’re ill.

8:47 I tried prescription sleeping medications and antidepressants, but the side effects were completely intolerable so I stay away from them. Mike had to tell me to stop because I didn’t realize how bad I was.

9:26 I don’t use antidepressants but they do help some people.

9:40 I take NADH, an amino acid.

11:33 Things that help my Fibromyalgia.

12:43 About sleep and what I’ve tried to help me sleep better

16:03 Pain medications – I mostly use over the counter pain medications.

17:29 Stretching helps my Fibromyalgia. Light exercise also helps, but too much exercise inflames my CFS.

20:54 Neuromuscular massage

22:10 Hot baths. I take a hot bath in Epsom Salts almost every day.

23:30 Sit with a heating pad at night.

24:58 I live in a cool, dry climate. Heat and humidity make me a lot worse.

27:00 My supplements.

30:57 I found out I had major food sensitivities

33:40 Noise and lights really aggravate my nervous system.

You can see my other video, About Chronic Fatigue Syndrome and Fibromyalgia here:

We also have information about the symptoms and more of my own experience with CFS/FM on our website here:

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42 Replies to “Coping With Chronic Fatigue Syndrome and Fibromyalgia”

  1. I can recommend 5-HTP for better sleep, as antidepressant and against headache. One starts with a low dose of 3 x 50mg daily and can go up to 100 mg, even 200 mg in the evening. Maybe you heard of Dr Rodger Murphree, who is an expert on fibromyalgia. Just reading one of his books and I can tell you that he really understands fibro patients! He has also several videos here on YouTube.
    Thanks so much for sharing your experiences and congrats to you both mastering such a difficult situation for such a long time! You are a very sweet couple! ❤️

  2. Thank you for sharing. Great personal perspective, factually based, and earnest. Like you said, this takes trial and error, and good support from loved ones…

  3. I'm sorry. I don't know much about the disorder, but I had a dental patient who could not get numb for dental treatment because of her fibromyalgia. So sorry.

  4. If you decide to try the anti depressants again, it's really important to find someone who specializes in this. I know someone in Oregon who does. Most Doctors prescribing them aren't experienced and give you stuff that may work against you. I was serotonin sensitive and could not stop crying and got anxiety from the wrong drugs, UNTIL, I went to someone who knew which drugs to prescribe. Best wishes.1/2 an Ambien works for me with sleep. You are right, sleep is HUGE.

  5. I am so glad to hear that someone finds Alkaseltzer a relief!!! It helps me also. I also use Atarax for fibro and other things

  6. This might have been asked and obvious but have you had your ferritin levels checked for anemia? I was wondering bc you respond to vitamin c and also bc you had restless legs syndrome.

  7. Maybe have a look at Dr. Katinka Van der Merwe YouTube video and she has written a book "fibroyalgia, taming the beast". Thank you for the video.

  8. Your husband is an angel. My husband passed away 4 years ago he too was an Angel. It's been hard on my own. Sometimes I'm in bed for days and feel like I'm mental. But hearing your story makes me feel so much better. Thank you.

  9. If you dont have someone to massage you, get the 20$ monthly membership to Planet fitness- they have water massage beds that are WONDERFUL.

  10. I understand everything you are talking about I was 12 when I started getting sick and was 15 when diagnosed with Fibro and CFS (now 32). Due to having this for so long it has caused many more medical issues and nerve damage over the past year 1/2, but slowly starting to get all that figured out. As a mother of 3 and a railroader's wife I completely understand the bedtime thing with the kids and being completely exhausted beyond belief.

    I do want to compliment your husband for being SO extremely supportive and willing to learn and understand about these 2 things!!! It definitely helps to have to support and understanding. Thank you both for making this video.

  11. Pain in neck and shoulders. Heat smooth river rocks in hot water with essential oils. Have someone rub these rocks on your muscles, and the moist heat from the wet rocks will relax your muscles. If no one is around to help me I just put the rocks on myself.

  12. Respectfully asking you to consider viewing
    'Fat, sick and nearly dead' Joe Cross.
    Marc Ashley- video, (fibromyalgia)
    if you feel pleased to access more knowledge
    continue gaining relief from F.
    Juicing has become a way to pain freedom!.

  13. Thanks for info going to try some of your suggestions, I also cannot take antidepressants and have difficulty with other meds as well. antibiotics do help and Ativan for that over stimulated feeling and lock up feeling. You described how I feel pretty well. I have been diagnosed with fibro and always thought I had chronic fatigue, may check into that!! Do you get vertigoish? thanks again for info

  14. How many pills/supplements do you take a day? How do you remember to take them? I always forget to take the few that i'm currently trying for fibromyalgia :(

  15. I take Naproxen 550mgs 2x a day and muscle relaxers 10mgs 3x a day and I have Fibro,osteoarthritis and scoliosis. I'm not always pain free and depending on what and how much I do,is weather or not I have to take extra pain meds. Why aren't,more people taking those? I've had all these things wrong with me,for almost 30 years.

  16. Thank you for making videos about your CFS and Fibromyalgia. I have both as well, along with RSD and hypothyroidism. It's hard, and I'm always looking for new tips. Also thank you to your husband for participating and supporting you. I often wish my husband would show more interest/support. 💕

  17. My body told me that it wanted moist, humid and very warm weather. A doctor recently said to me that hot and humid is good for muscles where hot and dry helps joints. When I was in Arizona, I hurt so much – hot, dry heat…

  18. I totally understand how you feel. I suffer from exactly the same symptoms. I am very frustrated. I have a husband and 2 teenage boys, one who is autistic. You are blessed to have a Christian man who supports you. My husband is always yelling at me and criticizing me. He can't understand that I am ill. His mouth only gets me more frustrated and anxious. I forget things and he says I am going crazy. He thinks I am trying to be lazy even when I can do certain things even when I tell him I am in pain. God help me! I have contemplated divorce many time but have not done it because I am also Christian and according to the Bible marriage is until death do us part but I am miserable. God bless you and heal you and God bless your husband for knowing how to be a good husband.

  19. NO PILLS …DO IT BY FOODS IT IS HELPING ME IT IS OUR FOOD THAT IS CAUSING THE FIBRO AND ME AND OTHER CHRONIC ILLNESS INCLUDING ALZHEIMER AND AUTISM…PILLS MAKE IT WORSE,,,,YOU HAVE TO DETOX AND COMPLETELY REBOOTS YOUR SYSTEM…LYRICA AND TRAMADOL NEARLY KILLED ME …YOU HAVE TO DETOX SLOWLY OFF YOUR MEDS…..I AM FIGHTING TO CHANGE THE LAWS ON OUR FOODS…HELP ME

  20. COCONUT OIL …CAPSUALS….IF YOU DONT LIKE THE OIL…COOK EVERY THING IN THIS…THEN DRINK THE MILK WARM BEFORE BED AFTER A BATH WITH OILS AND EPSOM SALTS…FISH OILS …THESE ARE THE MINERALS HELPING ME…SELENIUM ACE&D MAGNIZUIM FEROGOBIN..IRON…LOOK AT ALL NATURAL…GINGER…HEMP OIL….JOIN ME ON FACE BOOK ANGIE MCEVILLY

  21. OH AND SAUERKRAUT THIS AND GREEK YOGART WILL HELP YOU BUT YOU MUST CUT OUT DAIRY CAFFEINE….ONLY EAT GLUETEN FREE I BUY FROM THE MUSCLE FOOD SITE FOR ME MEATS PLENTY OF FISH…IF YOU STICK TO ANCIENT CHINESE SEASONAL FOODS YOU CAN NOT GOT WRONG HERBS ROOTS NATURAL AND PURE …LOVE YOUR BODY

  22. Energy depends on a lot of things…I had to address hormone imbalance, depression, IBS, several areas of spinal pain if I try to do things like sweep or rake (twisting). You have to learn your limits and keep your pain level down. Really helps…And good luck sleeping on natural substances. I still don't have an answer. Medical MJ is helpful. When I had money I've invested in trying alternatives …I LOVE MY CHIROPRACTOR…EVERY 2 weeks, as long as I don't hurt myself I'm doing well as far as pain goes. I get dizzy if I move too fast. Nothing new here

  23. Please tell me what is the meds you take when you go all pale and chronic fatigue during a flare-up. Can I get it in South Africa?

  24. That's exactly right what you said he didn't see when you crashed after he dropped you off. We make YouTube videos and people don't see when I'm "crashed". I "appear" to be fine on video. If people only knew what chronic illness was like they would be shocked we can do anything at all. Excellent video. I left Ohio to Florida…because the cold KILLS me. I actually love the heat but everyone is different. The thing too is we don't know how we are going to feel from minute to minute…in my case I don't make plans. I don't want to cancel on people so I just don't make plans. I'm the same way too where I can do ONE main thing for the day. I LOVE Alka Seltzer. No idea why but it's a life saver for me too! I'm glad I'm not the only one 🙂 I also drink 2 glasses of OJ a day. It's nice to hear someone else say the same things. The brain frog is the worst I think. EXCELLENT video!

  25. I was diagnosed with Fibromyalgia back in 1996 and have declined greatly. On to of that I developed a degenerative neuro disease. ..I'm really suffering.

  26. Have been sick for 5 years. Horrible brain fog, fall over, no balance, collapse after a few days at work. I have had good results by getting off all meat and eating fish and veggies. I have also had great results by juicing 10 lbs of carrots a week and found a fantastic result with 1 shot of RUM at night and as much sleep as possible. Google it. RUM has been used for centuries and kills blood microbes/bacteria in the bloodstream. Sailors used it to cure dysentery and scurvy on ships Try it – its fun. When I first took the RUM I woke up at 3pm and could not go back to sleep-was not tired. So I now take it with a melatonin tab and I can sleep. Try to get 8 – 10 hours every night and rest at home for at least 1 day a week. I work 12 hours a day, I was sick as a dog but now I am at least a little better. Absolutely NO cured meats at all. Still sick but its more tolerable. Take the shot at night with a melatonin tab and wake up naturally. ITs simple, you can start tomorrow, let me know how it works.

  27. I really love watching your channel. One of my friends has a daughter who is 16yrs who is just found out she has fibromyalgia. I sent your posts to her. I have chronic pain due to results of a car accident that happened 30 yrs ago. I have found that , for me, I had to develop a "relationship" with my pain. Which may sound weird–but being mad and frustrated–was not helping me. It helps me to listen to my body better. Lots of times rest helps. Staying warm. Taking a hot bath. Feeling ok to say NO when I have to–when I am expected to be places. Blessings to you

  28. Gabapentin has really helped me with the shooting nerve pain and the nerve sensation under my skin…which ultimately cut down on the irritation I felt if my husband would even talk! I also drink at least 60 oz. of electrolyte water per day. Gatorade has a G2 that is without sugar. I drink a full 20 oz. the minute I get out of bed, another 20 oz. around 2 o'clock, then another 20 oz. at 6. Even though I still have the body pain of fibromyalgia, the hydration just really helps. Also, the gabapentin has helped with my irritable bowel symptoms.

  29. I live about 40 miles from you and would love to meet you in person.. I live in Denver and I have fibromyalgia and so do 2 daughters and my sister, you said your brother and mom have it also.. I find it very interesting and we have that in common. And the heat bothers me more too so I get it. How do I private msg you? Not very good at this sort of thing on YouTube

  30. Thank you for sharing! I've been feeling worse and didn't know what was wrong with me. I'll give some of these tips a try.

  31. There are Drs that give spinal pain injections that last several weeks. We are all different. Exercise is part of my activities of daily living, like shopping pushing the cart up and down the aisles. I don't like massage, but hot baths or hot tubs feel awesome! I did PT for tmj, we all seem to get that, I do much better at the dentist.Getting out of WINTER WAS MOST HELPFUL…Living in CA much easier than NY. If you can't find a DO there r CHIROPRACTORs that do the same manipulating…twice a month.

  32. Tawra, I really appreciate this video & the previous one. I do not have either of your illnesses & you really gave me insight to what you go through. Thank you for doing these videos. It makes me more aware of your illnesses & that I need to take care of me.
    What I do have is major depression, two kinds: 1 from a chemical imbalance & 1 from environmental (things that have happened in my environment which for me was abuse & molestation. I also have PTSD. On days when I am really struggling I have what is called nervous fatigue which is where I am very sleepy & tired, if I really work at it I am still able to force myself to do things & I feel better for having done something. Also on these days toward the end of the day I am exhausted & sometimes go to bed extra early. I have found to endorse myself for what I do physically & emotionally.

    Thank you again.

  33. Thank you so much for sharing your story. I have AFS and OA. I was crying during the whole video 'cause it was like if you were describing me to certain degree. I as you, have a wonderful husband that has been with me through thick and thin. I wasn't sick when we got married 9 years ago. My health started going down hill about 6 years ago. 3 years ago I was diagnosed with OA and only a year ago with AFS. I was pretty much bedridden, depressed, moody, etc. Everything hurt and everything bothered me. I couldn't even use sheets or blankets to cover at night…. clothing would bother my skin and muscles too. For the last year I have changed my diet, I've been seeing an acupuncturist and a chiropractor, and I've been trying to declutter my life, and I've been taking vitamins and natural things. It hasn't been easy and I have a long way to go, but I'm not giving up. I refuse to!!! Watching you and your husband by your side brings joy to my heart. We are truly blessed to have them in our lives. They can't completely understand our pain, but they still love us, are kind, patient and uncoditional men. God bless their hearts! And God bless you!

  34. Forgive my ignorance…. what's the difference between regular alka seltzer and gold alka seltzer? I live in Canada… and I don't think I've ever seen the gold one. Thanks!

  35. Thanks for posting this. I can totally relate to doing a house project and then being wiped out for two days. Happening to me right now. I have to learn to pace myself. A lot of what you talked about with CFS made total sense to me. Thanks.

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